On May 9th I
visited Triangle Inc. in Malden , MA . Triangle is a non-profit corporation that empowers
and educates people with disabilities from youth to adulthood to be productive
members of society and have a great quality of life. I was given a tour of the
whole facility. There are different areas that I saw that work together to make
Triangle a great organization.
Impact is a
program that provides hands-on personal safety training.
Empowering People
for Inclusive Communities (EPIC) prepares young people with disabilities to be
actively engaged community leaders through education, leadership development
and community service.
Ablevision
is Triangle's national award-winning television and media program created and
produced entirely by people with disabilities.
I also
toured and met people at their Fulfillment Center. That is where employees create, assemble
and package products for 60 American companies from Bed Bath & Beyond to Marshalls .
My tour ended with a
television interview with Ablevision. They are putting a story together about
me, my reign as Ms. Wheelchair Massachusetts, and my singing and songwriting career in OLYPSYS, my
band.
Speaking of the band, I will
periodically give updates of what's going on because as Ms. Wheelchair
Massachusetts 2012 I want to encourage people with disabilities to use their
creativity and pursue their dreams. We just finished recording our first CD! It
takes approximately 8 hours to record one song and it is amazing how a producer
can take a song and make it into something that you hear on the radio! I am so
thankful that my mother and father gave me piano lessons at age 6 because they
thought it would be therapy to keep my hands moving. It was and it has turned
into so much more throughout the course of my lifetime.
Yesterday I made an
appearance at the Families of SMA Walk and Roll at Wompatuck State
Park , Hingham Massachusetts . I was born with Spinal Muscular Atrophy (SMA) type
2. Information about my disability was scarce when I was a child but my parents
persevered and found creative ways to keep me healthy and active. There were
700 people at the fundraiser and, as I was getting out of my van, I heard them announce,
"Ms. Wheelchair Massachusetts 2012 has just arrived! Let's give her a
round of applause!" That was pretty exciting, I must admit. I took
pictures with some of the children and others. I provided toy crowns for the
girls so they could be Princess for the day.
I spoke to a lot of parents
with disabled children. I always make it a point to say my age, 52, because
lifespan is always a concern to parents and young adults with SMA. I have never
been a believer of statistics; I share my experiences with others with SMA so that they
will live as full a life as possible while maintaining their health and
well-being I try not to succumb to the fears and limitations some medical
professionals may put upon me.
They have made more medical
advances in present years. What amazes me is that the couple who started this
Walk and Roll lost two young children to SMA over 12 years ago. They have been
hosting this fundraising event for 12 years and last year alone raised
$125,000. We are very close to a treatment; clinical trials in humans has just
begun! I had the privilege of speaking with one of the scientists involved and
I am planning to take a tour of the Woods Hole facility which is one of the
places where they are making medical breakthroughs.
You can see more pictures of
these wonderful events on my Facebook fan page at www.facebook.com/MsWheelchairMassachusetts2012 .