Wednesday, August 18, 2010

Ms.Wheelchair America 2011…A glimpse of my adventure in Michigan



So this was finally it—the month that I competed in the Ms.Wheelchair America 2011 pageant representing the state of Massachusetts. It was not only my first time competing but also my first airplane adventure in my electric wheelchair, so I was very interested in how that whole process works. My family and I arrived at the Amway Grand Plaza Hotel on Monday evening just shortly before dinner was about to be served. This was the time that all the contestants and state coordinators introduced themselves and as orientation began we also got our red binders which were named our “bible” for the week, as they were very important in telling us where and when we had to be at different places throughout the week. This was also the time when the expectations for us were set for the week as far as how we should present ourselves as representatives of our home states and contestants. Little did I know, this was the beginning of the ride of a lifetime, as I met 27 of the most amazing people ever who were all so positive, radiant, and friendly. We all became very close very quickly.
The next day we got up bright and early (as we did every morning) to begin our Fun Day, which consisted of visiting the Gerald Ford Presidential Museum and afterwards breaking up into teams with the coordinators acting as our team leaders to go on a scavenger hunt of different things that we could find in the city…with a little help from the locals. Later that evening our team was given the “Most Determined” award for completing everything on the list, including all the bonus items! This announcement was made later that evening when we all went out to dinner at Mojo’s for a night of good food and fun entertainment. I even got to sing karaoke a little bit, along with a few of the state coordinators who were also called up to sing as well. It was fun to loosen up and be a little silly. The term “Fun Day” definitely suited the day!
Throughout the week we attended many different workshops when we were not in our judging sessions (interviews). The topics ranged from hearing inspirational stories of other men and women with wheels to learning some self-defense and learning more about the ADA and what things are acceptable and which are not when it comes to disability issues. These workshops were all very interesting, but I do wish that they could have incorporated more interactive material, as far as things to do with the other contestants in groups as another chance to get to know all the ladies that you are competing with throughout the week.
The interviews were Wednesday, Thursday and Friday ranging from five to fifteen minutes long and were in somewhat of a random order depending on the day. The judges were all nice people.
On Wednesday and Thursday night we had theme nights which were “At the Movies”, which meant dressing up as our favorite actor/actress or movie character and “Cruisin’ to Motown” which meant thinking of famous Motown singers and dressing like them. I (and about four other people-haha) thought alike and all dressed up in Dream Girls costumes. With mine I even got the make-up accessories and a toy microphone. There was also a Temptation Review band that came to sing for us that night which was really awesome. Due to my love and slight obsession over the Harry Potter series, I decided to dress up as Hermione Granger for movie night. They gave us a murder mystery to work together with people at our table on to try to solve where we had to go to the other tables and gather clues to help us solve it. It was both fun and challenging, but more importantly it got us working together to solve it.
Friday and Saturday night consisted of the main events of the week, the platform speeches and the crowning ceremony. My platform is “Discrimination and Stigma Associated with Disability” and I talked about some of the different references I have heard about people with disabilities and why it is wrong to assume things with us…or anyone else for that matter. This is one thing I am very passionate about is breaking down the misleading ideas and allowing people to see that we really are just like everyone else in every way and that “Yes We ALL Can!!”. Even though I was really nervous I did get the majority of my ideas and the main idea across, which was a really big accomplishment for me. Everyone was really supportive and understanding so I tried really hard not to be too hard on myself, even though it was difficult.
Finally on Saturday night was the crowning ceremony. To be really honest I was still feeling a bit down, but in the end with the support of my new amazing friends, as well as the old ones, I was able to pull myself together and adopt a positive attitude. By the time the crowning ceremony rolled around (no pun intended hehe), I decided to think of it this way: “If nothing else, I have made 27 wonderful friends in a week. Not many people can say this.” and I truly meant it-I was really grateful for the opportunity to meet everyone and share the experience. I am looking forward to staying in touch with them all and hopefully we will all meet again soon.
At the end 0f the night after dinner, I made my rounds to all the tables to say goodbye to everyone, as my family and I had to leave early in the morning before breakfast to make it to our return flight home. This was really bittersweet. I was happy it was all over and was ready to return to my normal life back home, but at the same time I was really sad to let go of all the awesome people I met throughout the week. It was time to return to The Bay State.
I will still be representing Massachusetts as the current titleholder for a few more months and as they say “Life Rolls On”. Of course I will continue to update my blog with all of my adventures as Ms.Wheelchair Massachusetts 2010. Again thank you so much to everyone who was a part of making Ms.Wheelchair America such a huge success and congratulations to Alexandra McArthur, Ms.Wheelchair North Carolina 2010 and the newly crowned Ms.Wheelchair America 2011! You will do our country proud for sure!!!

Tuesday, August 3, 2010

ADA Day at Boston Common



This month I attended another great event, the 20th Anniversary Celebration of the Americans with Disabilities (ADA) Act of 1990, which was held on Boston Common on July 26, 2010 from 12-3pm. This event was sponsored by many different disability advocacy groups including Disability Policy Consortium (DPC), the Spina Bifida Association of Massachusetts (SBAMass), Boston Center for Independent Living and of course the Ms.Wheelchair Massachusetts Foundation. This was an important day in disability civil rights history because the passing of this important piece of legislation was the beginning of more civil rights for all people with disabilities, thus more opportunities for us in the community, with school and employment. It was the beginning of access to an otherwise inaccessible world.

The Hosts for this event include the Boston Center for Independent Living, the City of Boston, and Disability Policy Consortium, the Institute for Human Centered Design and the New England ADA Center, and the Statewide Independent Living Council. Live entertainment included comedian Jonathan Katz, the Matt Savage Trio, the Tommy Filiault Band, and speaker John Hockenberry. There was a short march that left Boston Common heading down Tremont Street to kick off the day that left from the corner of Tremont and Boylston at 11:15am that day. To get there I took the commuter rail to South Station and then took the Red Line down to Park Street, which was a bit confusing even though I have been there lots of times already, but I got there eventually.

There were many board members from the Ms.Wheelchair Massachusetts Foundation present that day and we had a table to showcase the Foundation and what it is all about. Of course as Ms.Wheelchair Massachusetts 2010, I was there ready to enjoy the day and the events. I even got to sign pictures at the table and take pictures, which was really exciting! I had gotten a chance to catch up with a former professor of mine from Bridgewater State University who works for the ADA New England. I had taken a class with her on Disability Issues and that was when I got the chance to do a video about life with a disability and how I negotiated accommodations and an independent life as a college student, as an example to other people with disabilities who might be wondering how it’s all done and looking for advice or support.

It was great to see so many people with disabilities and supporters of people with disabilities at this great event that day. The main idea or “slogan” of my platform is: “Yes We ALL Can!!” meaning that people with and without disabilities can participate in the same activities and be just as successful and happy. It is at events such as this where we really get to show everyone just how true this really is. It really was a great day with great people, including others from the Ms.Wheelchair Massachusetts Foundation and a day to remember for sure.
So this ends another month for Ms.Wheelchair Massachusetts 2010. I am excited because Nationals is only about a week or so away and my family will be there to cheer me on. I am really looking forward to meeting everyone, making some new friends and having a lot of fun! Also, looking forward to exploring a new state and my first official plane trip with my electric wheelchair. The countdown is down to seven days!! Michigan-here we come!

Monday, June 14, 2010

Walkin’ the Walk, Rollin’ the Roll, and Talkin’ the Talk!


So this month I continued my walk/roll spirit and signed up to participate in the NStar Walk for Children’s Hospital which took place at the DCR Hatch Shell in Boston. It was a little difficult to find a partner because this is the time when so many other walks are happening and many people had signed up for other walks, which was great as well—so I decided to do the walk and represent Ms.Wheelchair Massachusetts myself and show my support to Children’s Hospital. It was nice though that my dad decided to join me in time for the actual walk.
There were two in-person distance options- 2 miles or 7 miles and a virtual option for anyone who could not be at the actual event. So I decided to do the 2-mile option, mainly because I wasn’t sure my chair would support a 7 mile walk. So our start time was 12pm from the Hatch Shell, as opposed to the 7-mile walkers who started at 11am. For the event, it was required to fundraise a minimum of $150.00 to participate, which I ended up making it. I decided to spread the word on Facebook on my page as well as the Ms.Wheelchair Massachusetts page, and Ms.Wheelchair America 2011 page to get the word out quickly. And quickly the word spread, as I made $55 in less than 24 hours time since I posted the link to my page! The money started rollin’ in! It was quite a bit of money and I wanted to see how much I could raise before I asked my dad for any money. He was very supportive of the cause because they really have done a lot for me and my family over the years, and we are grateful for all of it!
On the day of the Walk, I decided to go to the Cambridge Galleria which was the closest location with an address that the Ride would drop off, so it made sense to meet there and take their shuttle bus, which was free. The weather report for that day was not the best for a walk, as it was supposed to thunderstorm, but it was a rain or shine deal with the NStar Walk…so I was there to support my Hospital and participate! As it was, the rain held off. We were asked to be there 30-45 minutes early to register, get our shirts and bibs and enjoy the pre-walk activities. Everyone there was really nice and it was great to see so many people out there supporting Children’s Hospital Boston! I even got to see a former doctor of mine who took care of me when I was inpatient a few years back. Overall it was a very enjoyable day and I’m glad I got to be a part of it and help them help the thousands of children who come to the hospital every year.
I came across a man who was taking pictures for the Boston Herald, so I may end up making a debut in the paper! Also, I found it cool that I was not the only person with a crown and sash, as there was a whole team full of ladies with crowns and sashes. Also another person with a crown wanted to take her picture with me which was really sweet. I also got some good pictures at different landmarks on the route. The entertainment was awesome as there was a band and a couple of doctors who dressed up as clowns and some characters who posed with the kids who were there. It was of course great to see so many other kids in wheelchairs there for it.
The journey home was a little on the adventurous side as we had decided to venture off to a nearby Au Bon Pain…and ventured away from the shuttle buses that brought us to the Hatch Shell. So we had no way back to Cambridge where the Ride was going to pick me up. Luckily we were near the Red Line MGH Station and so we were able to take the train home, and my dad ventured back for the car…oops! Oh well…all’s well that ends well? 
It was important for me to be able to do this walk. I’ve grown up going to that Hospital and they have done so much for me and still continue to do so, as well as for thousands of other children each and every day, year after year. This was my way of finally being able to give back to all of the amazing people at a wonderful healthcare facility, as well as meet other families who also look up to Children’s Hospital Boston and their staff. I know I would not be doing as well as I am today had it not been for the doctors, nurses and everyone I’ve met at Children’s Hospital Boston. I was very proud to wear my MWMA 2010 crown and sash and come out and support everyone who was involved with this amazing event.
So this ends another wonderful month of Ms.Wheelchair Massachusetts 2010 events. Next month I am looking forward to another big event, the 20th Anniversary of the ADA Celebration which will be held on Boston Common on July 26th, 2010 from 12-3pm. Can’t wait! Hope to see everyone there! (55 days until Nationals! Who’s excited?! Who’s ready? )

Monday, May 31, 2010

Run in the Falmouth Road Race to Support Ms. Wheelchair Massachusetts Foundation

You Can Help To Support the Ms. Wheelchair Massachusetts Foundation by Running in the Falmouth Road Race

 Sunday, August 15, 2010
 Race begins at 10 a.m.
 Course is 7 miles in distance
 Begins in Woods Hole, Cape Cod
 Runs along the coast to Falmouth
 Runners receive free t-shirt

You can run in this lottery-entry only race
to raise money for Ms. Wheelchair Massachusetts!
Runners Needed

Each runner must commit to raising $400 for our non-profit program.

Ms. Wheelchair Massachusetts is a 501 c3 non-profit organization
The Ms. Wheelchair Massachusetts Program gives women with physical disabilities
a forum to promote the achievements as well as the needs of mobility impaired persons.

Unlike traditional pageants, the Ms. Wheelchair Massachusetts Program is in no way a beauty contest. It is instead a competition to select the most accomplished and articulate spokesperson for women with disabilities in Massachusetts.

Requests to run MUST BE RECEIVED BY JULY 2, 2010

For more information or to apply, contact Autumn Grant at 774-501-1185 or email: mswheelchairmass06@yahoo.com. Please stop by our website at www.mswheelchairmass.org for more information on our organization.

Thursday, May 27, 2010

I Wanna Walk n Roll All Day!

This month I got to attend one of the biggest events of my reign- the Spina Bifida Association of Massachusetts’s 1st Annual Walk n Roll on May 23, 2010, which was held at Endicott Estates in Dedham which is a really beautiful property. The weather was somewhat gloomy in the morning but in the afternoon the sun came out and it was gorgeous! It served as a great fundraising and awareness event.
Although the kick-off party in March was a small gathering, there were definitely many more people at the actual event. Ellen Heffernan-Dugan was in charge of organizing it, among many others in the Association as well and they all did such a great job. There were over 100 walkers/rollers spread out over 15+ teams, which was really great to see, not to mention that we fundraised over $28,000 through this amazing event which will no doubt be put to good use for future programs and services for people living with Spina Bifida in Massachusetts.
There was a DJ and the kids got to play games like limbo and musical chairs which was fun for them. I didn’t end up making a team after all, but instead I just went to cheer everyone on and meet the families and others with Spina Bifida. I did get to address the crowd at the beginning along with the Association’s President Cara Packard and Ellen Heffernan-Dugan who is the Executive Director of the SBA Mass, telling my life story and getting everyone fired up to have a great walk which was incredible!
While thinking about what I was going to say, I got to reflect on all my accomplishments and challenges over the years that I don’t think about on a daily basis which was really cool because I realized I have accomplished more than I feel like I have most days. I also wrote a story about my life and Ms.Wheelchair Massachusetts in their press release, and was told that I would be appearing in the Dedham News Transcript the next day, which was really exciting again being able to share my story. Also I got to get my picture taken with some of the teams and families and meet them. They were all impressed by my speech and my story and how far I have come.
I’m really happy to be so involved with the SBAMass, not only because I have Spina Bifida but because of the difference that I’m making for people with SB, and expanding my leadership skills while meeting some really great people in the process. I realize now that I’m not as alone as I think I am most days and that there are people out there who understand what life with a disability is really like.
Being Ms.Wheelchair Massachusetts 2010 has really given me the opportunity to get involved with and help out so many different people; I’m really enjoying every minute of it and really looking forward to meeting everyone at Nationals! :) (74 days left!)

Santara

Monday, May 3, 2010

April Update

Hi Everyone, Santara here with another update. April was a pretty laid back month. I did participate in one event along with Autumn called LAUNCH which was held at Bristol Community College in Attleboro, MA. At this event, we had a table to showcase Ms.Wheelchair Massachusetts Foundation with the pamphlets and business cards etc. There were also different workshops to attend all about promoting STEM Literacy and incorporating it into other fields like Early Childhood Education for example. I got to attend two different workshops to learn more about it. The first one was called “STEM Literacy & the Education Model”. It was run by a woman named Joan Ricci, who is the Director of The Literacy Center and also an Early Childhood educator. She talked about the effects of the STEM model between birth to age 5, which was really important to me because I too want to be an Early Childhood teacher. At first she asked us all general questions like: Who has read to a child before? Who has bought a book as a gift for a child/mother? And then she spoke about how those early moments in a child’s life are so crucial to children’s success and the likelihood that they will pursue careers in mathematics or engineering because of our efforts.
The other workshop that I attended was called “Like Herding Fish-Managing the Startup Process” and this one was all about effective business management and leadership. The two people running the workshop talked about all the different tools a person needs to start your own business, the importance of finding the right people to help you succeed in your business, making tough decisions-like when you should hire or fire a person and not worrying so much about other people’s feelings and what others think, but instead doing what is right for your company.
Well, that’s pretty much it for this month. Next month I am looking forward to two great events: a forum for the candidates for Governor at Perkins School for the Blind in Watertown on May 18th and Spina Bifida Association’s First Annual Walk n Roll on May 23rd at Endicott Estates in Dedham. There is still time to sign up for the Walk n Roll if you want to sign up as a team or individual walker. It is going to be a great event both for fundraising and raising awareness of Spina Bifida and other disability issues. If you are interested in building a team or being an individual walker, please go to walknrollsbamass.org to sign up. Also if anyone wants to build a team with me feel free to let me know. If you cannot make it out to Dedham that day for the event but would still like to participate, there is an option to sign up as a virtual walker as well.
Thanks!
Santara